![]() ![]() ![]() Although, I do think the difficulty breathing is a less common symptom and is associated with more severe cases of CCI as I believe you need to have significant cranial settling to cause that particular symptom. Surgery is a common trigger that can make everything worse.ĬCI/AAI is also *very* common in the Ehlers-Danlos Syndrome community and you'll see many cases similar to mine and Jeff's. There are several papers re: general anesthesia in rheumatoid arthritis and Down Syndrome and their relationship to CCI/AAI (two communities in which this is common). ![]() It was only after the thyroidectomy that the positional nature of the symptoms (that turning my head or laying on it made everything worse) became clear. Hi I believe I had a mild case of this for a very long time (perhaps since my onset or at latest, 14-18 months later), but never associated my symptoms with my neck or my head position. Then one day I realized, if I turned my head too far to the left, it would immediately triggger my symptoms: I would not only stop breathing, I would start listing leftward, unable to move or speak. So that’s what we did: I stopped sleeping on my back and haven’t laid on the back of my head since July. Finally, we realized that if you rolled me onto my side, I could breathe normally. We had no idea what was happening (this had never happened before). Breathe, not breathe, breathe, not breathe. I’d gasp for air and as soon as I’d gotten some, I’d stop breathing again.įor 45 minutes I did this. After about 15–45 seconds, the automatic breathing response that should have been there would kick in. But I could never will myself to breathe. If I tried really hard, sometimes I could make my diaphragm quiver. I lay there, mostly aware of my surroundings, but I couldn’t move and I couldn’t speak and when I tried to breathe, nothing happened. One night, as I laid down to go to sleep, I stopped breathing. And dysfunction of the brainstem has been implicated in ME/CFS, most recently in this 2018 study. I was wondering whether there might be a reason for this and certainly this area seems important in ME/CFS, as two brain autopsies of ME/CFS patients have found enterovirus infection in the brainstem. And all these conditions can cause ME/CFS-like symptoms. craniocervical instability - instability of head & neck bones compressing the brainstem or upper spinal cordĪll of these conditions cause compression of the brainstem, or compression of the cervical spinal cord which joins the brainstem.tethered cord - where spinal cord is "stuck" to a structure within the spine such as scar tissue.Chiari malformation - where brain tissue is pushed into the spinal canal due to a skull which is too small.syringomyelia - fluid-filled cyst in the spinal cord which compresses the spinal nerves.cervical spinal stenosis - spinal canal becomes too narrow, which can put pressure on the nerves.There are actually a number of these conditions: After reading amazing story of his recovery from ME/CFS symptoms and POTS after addressing his craniocervical instability and the brainstem compression this instability causes, I have been grouping together as many conditions as I could find which cause either compression of the brainstem or compression of the cervical spinal cord. ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |